重病孩子留遗言续 骨髓移植成功半年后可回学校

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　　看得出来，孙凯对自己的未来有着美好的期盼，有着许多乐观的想法。
　　4月25日，孙文辉被取保候审，回到儿子孙凯的身边。



　　去年春天，沧州10岁男孩孙凯查出患再生障碍性贫血。孙文辉花去家里所有的积蓄、借遍周围的邻居亲朋后 ，一家人陷入无路可走的境地。多次病危、曾经连续10多天不能吃饭的小孙凯一次次挺了过来，对于无处借钱的 爸爸妈妈立下“遗嘱”，愿意下辈子再做他们的儿子。

　　陈惠仁还说，“在医院中，看到过很多患者由于治不起病而放弃治疗，同时生命也被放弃，医院很无奈。医院 只能通过科学技术发展和医疗水平发展提高治疗疾病的能力，而救助需要由社会保障部门和慈善部门来做。作为医 生，我呼吁将一些重大疾病，和一些可以治好的病纳入到大病救治的保障体系中，让所有能够医治的病人得到医治 。”
　　孙凯说，在身体最难受的时候，他觉得自己活不了了，他不知道自己的病还能不能治好。他说，“治不好我也 不怕，治不好就死了。”11岁的他曾经距死神是那样的近。

　　孙文辉动情地说，“感谢这个社会上的好心人，没有你们的鼓励和帮助，就没有孙凯的今天，祝福天下所有的 好人一生平安。”
　　8月3日，孙凯进行了造血干细胞移植手术。数天后，孙凯的白细胞开始生长，随后红细胞、血小板开始生长 ，这意味着孙凯的身体正渐渐恢复造血功能。
　　8月18日，医院检测报告显示，孙凯身体的白细胞开始生长。听到这个消息的他与爸爸妈妈一样高兴，在电 话里给老家的爷爷说，“爷爷，我白细胞长了,手机监听，能吃饭了。”疼的时候忍不住就哭，疼劲儿过去了才能吃能喝。
　　提到上学的事情，孙凯很高兴，“我喜欢体育课，喜欢玩篮球,窃听软件货到付款。我想着早点回老家，回去上学。”去年春天确诊再生障碍性贫血后，小孙凯就知道了这个名词，可并不清楚它的 可怕的含义，只是感觉浑身难受，受不了就哭，盼着早一点治好。没有想到，他的病要花那么多钱，把家里的钱花 光了，借了许多钱，还治不好他的病。

　　据主治医生陈惠仁说，8月3日，孙凯成功进行了造血干细胞移植手术，现在白细胞、红细胞开始生长，说明 他人捐献的造血干细胞开始在孙凯的身体内发挥作用，孙凯的身体开始逐渐恢复造血功能。造血干细胞移植手术后 ，需要防排异、防感染的治疗。大约一个月以后，孙凯就可以出院了。出院后一段时间，孙凯还需要定期到医院检 查。“这个手术的难点是预防排异的技术。目前，孙凯的白细胞数目很低，免疫力低。治疗后期是通过输血和输液 ，预防感染、预防排异。做完手术一般70%―80%的患者都会顺利走过来。”陈惠仁说，“之后 的2-3个月，依然是预防排异的关键时期。现在孙凯恢复状况很好。如果恢复得好，半年后，孙凯就能重新回到学校。 ”

　　爸爸是孙凯最亲近的人，在爸爸面前总有一些开心的事,手机监听器，给爸爸起好玩的绰号，让爸爸为他捏腿，还喜欢吃爸爸做的饭。
　　3月31日，孙文辉到中国红基会申请救助，因再生障碍性贫血不属于红基会救助范围被拒。失控的孙文辉用 刀劫持了一名工作人员。警察成功救出人质,手机监听是真的吗，孙文辉被关到看守所。






　　-呼吁将重大疾病纳入保障体系


　　在好心人的捐款和帮助下，孙凯住进了北京军区总医院，并通过中华骨髓库，找到了合适的造血干细胞移植者 。


　　本报独家报道此事后引起广泛关注。众多读者、网友为孙凯送来捐款，帮助这个陷入绝境的家庭 。


　　小孙凯：梦想回老家上学
　　小孙凯身体开始造血仍需防排异




　　孙凯现在的一日三餐，都是爸爸妈妈在租住的地下室亲手做好的，然后送到医院病房来。身体舒服的时候，小 孙凯比妈妈吃得还多；而身体不适的时候，他一点儿也吃不进去。有时候，11岁的孙凯吵着闹着要吃别的东西( 比如饼干)，爸爸妈妈也不敢让他吃。孙凯现在吃的饭不能放调料、酱油、味精等，别的没有什么特 殊要求。



　　在医院里，孙凯还与别的病人比赛，看谁的白细胞、红细胞长得快。有的人做手术比他早，年龄比他大，可白 细胞、红细胞没有他长得快。
　　-尚需防排异、防感染
　　据主治医生陈惠仁说，不久，孙凯就可以出院了。出院后一段时间，还需要定期到医院检查。估计半年后，孙 凯就可以回学校读书了。
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